News & Events

6th Annual AP4-HSP Research Conference

The RSZ TNC would like to extend a warm invitation to the 6th Annual AP4-HSP Research Conference hosted by CureAP-4 and the Rosamond Stone Zander Translational Neuroscience Center on October 28, 2022, from 10AM – 4PM (EST). This meeting will be a hybrid, with in-person attendance and an opportunity to participate remotely via Zoom. For those who are interested in attending in person, the conference will be held in the Fenway Room at the Inn at Longwood Medical, located at 342 Longwood Ave, Boston, MA 02115.

The purpose of this meeting is to:

• Recap what has been learned about AP-4 HSP
• Discuss progress in the ongoing research projects
• Discuss options for future clinical trials

Some exciting new developments in the ongoing gene therapy and drug screening projects will be presented, as well as a progress report on the Natural History Study and International Patient Registry. We look forward to some productive discussion about next steps for each of these efforts.

Overnight guests who need to be added into the hotel block, please register by September 26th:

REGISTER NOW >

In-person conference attendees and cocktail hour and dinner participants, please register by October 14th.

Cure AP-4 and Boston Children’s Hospital are thankful for the many impressive individuals, parents and children who are involved in the effort to understand and cure this disease.

Please do not hesitate to reach out to info@cureap4.org if you have any questions, or visit the CureAP-4 Homepage, and we look forward to seeing you on October 28!

*****

October 28^th, 2022, 10AM – 4PM (EST) – 6th Annual AP4-HSP Research Conference– Zoom Meeting Information:

Join from your computer or mobile device:
https://bostonchildrens.zoom.us/j/99293555786?pwd=MmN5RlF5T2hiQ3hySzhNay9CcHZFZz09
Password: 715036
Meeting ID: 992 9355 5786

Or dial in from your telephone:
Internally: x28882
Externally: 646-558-8656 (Primary)
408-638-0968 (If you are unable to dial into the primary)
Zoom International Dial-in Numbers:
https://zoom.us/zoomconference