News & Events

Center News

Molly & Robbie
March 2025

IDEFINE commits $300,000 to launch natural history study of Kleefstra Syndrome with Boston Children's Hospital

IDefine – The Kleefstra Syndrome Foundation today announced a $300,000 grant to help launch a groundbreaking natural history study at Boston Children’s Hospital’s Rosamund Stone Zander Translational Neuroscience Center (RSZ TNC). The three-year study will advance critical research and help prepare the Kleefstra syndrome (KS) community for future clinical trials.

Click here to see read the full press release.