For Patients
Overview
The Wisdom and Experience of Patients and Their Families Guide Us Along the Way
We listen closely to our patients. We develop trusting relationships with families, solicit their feedback and focus on outcome measures that are meaningful to the patient community.
Our Family Advisory Council guides our priorities and contributes ongoing feedback on research design. We maintain close working relationships with patient advocacy groups, and partner with them to convene scientific and family meetings.
We champion equity, diversity, and inclusion in academic and research activities.
We align with the “FDA Patient-Focused Drug Development Guidance Series for Enhancing the Incorporation of the Patient’s Voice in Medical Product Development and Regulatory Decision Making”.
