Patient Engagement

Community Partnerships

We collaborate with patient advocacy groups to hold scientific and family meetings, and to integrate patient and caregiver priorities into our Center’s strategic directions. These relationships will continue to expand. Our current partners are listed on this page, organized by the disorder they represent. Please click on their logos to learn more.

Idefine logo
IFCR Logo
Loulou Foundation Logo
CDKL5 Alliance Logo
NDSC Logo
NDSS Logo
MDSC Logo
FRAXA Logo
Cure SPG50 Logo
Simons Foundation Logo
PPMD Logo
RSA Logo
SWF Logo
PTEN Research Logo
RSRT Logo
SynGAP Research Fund Logo
TSC Alliance Logo
NORD Logo