Patient Engagement
Partnership for Succinic Semialdehyde Dehydrogenase Deficiency (SSADH)
SSADH Association
Through combined efforts consisting of education, advocacy and research, the SSADH Association is dedicated to helping children and families affected by SSADH. In collaboration with the SSASH Association, the RSZ TNC will be hosting the Database for SSADH Patients, which will serve as a patient driven registry to improve the availability of information available to investigators to facilitate better understanding of the disease and future treatment possibilities.