Patient Engagement
Partnership for Sturge Weber Syndrome
Sturge-Weber Foundation
The Sturge-Weber Foundation provides support for navigating life with Sturge-Weber syndrome and related birthmark conditions.
CLINICAL TRIAL
Longitudinal Studies to Identify Biomarkers for Sturge-Weber Syndrome
PI: Anna Pinto, MD, PhD | Natural History Study — NCT04717427 >
Patient Advocacy Group Partner: Sturge-Weber Foundation