Patient Engagement
Partnerships for Fragile X Syndrome
FRAXA Research Foundation
With the goal of finding a cure for Fragile X, FRAXA is a major contributor to the funding of biomedical research collaborating in these efforts. Equipped with an accomplished scientific advisory board, FRAXA aids in research endeavors first-hand by running scientific meetings, advising pharmaceutical companies, and providing education on college campuses, community settings, and international conferences. Outside of research, FRAXA also provides a support and resources for families.
National Fragile X Foundation
The National Fragile X Foundation is aims to provide advocacy, education, research, and treatment for individuals with Fragile X. These goals are accomplished through a focus on community, where they engage in a vast number of educative and fundraising events, conferences, support and networking services, and research endeavors such as repository hosting and consortia promotion.
CLINICAL TRIAL
Clinical Study of Cannabidiol in Children and Adolescents With Fragile X Syndrome (RECONNECT)
PI: Lisa Prock, MD, MPH | Clinical Drug Trial — NCT04977986 >